We know it's been a little while since we've posted on here so we really appreciate your patience. Part of what we talk about is balancing a rare disease with living a "normal" life and sometimes that means some things get put on the back burner. But we're back! So thanks for sticking around.
Hear all the things we've been up to and all the changes that we've brought into 2021, as well as some exciting opportunities we have coming up!
We'll be presenting Wednesday, 9/29 at 12:50 EST
And as always, follow us on social media and check out our new website for more updates!