With Mais and Mal
Healthcare Advocacy with Mais & Mal

Healthcare Advocacy with Mais & Mal

November 3, 2021

In this episode, Maisy shares her most recent healthcare endeavors while balancing work, school, and life, and Mal talks about hearing from providers at a recent conference. 

What advice would you give providers dealing with patients who have rare diseases? 

How do you balance your health and the other parts of your life?

 

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Catch Up With Mais & Mal

Catch Up With Mais & Mal

September 23, 2021

We know it's been a little while since we've posted on here so we really appreciate your patience.  Part of what we talk about is balancing a rare disease with living a "normal" life and sometimes that means some things get put on the back burner.  But we're back! So thanks for sticking around. 

Hear all the things we've been up to and all the changes that we've brought into 2021, as well as some exciting opportunities we have coming up!

 

Register for the Global Gene Summit!

We'll be presenting Wednesday, 9/29 at 12:50 EST

 

And as always, follow us on social media and check out our new website for more updates!

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Tubies and Spoonies and Zebras! Oh my!

Tubies and Spoonies and Zebras! Oh my!

March 15, 2021

CW: Mention of mental health challenges & suicidal ideation

 

In this episode, we dig into the ways social media has helped and hindered the chronic illness & rare disease community, the ways in which we can seek support and the risk of getting caught up in the toxicity of social media as a whole.

We would love for this to be a dialogue of sorts so feel free to share your thoughts and opinions in the comments! This is definitely one of our heavier episodes thus far, so thank you for giving us the space to share our thoughts and our journey.

 

National Suicide Prevention Lifeline

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With Mom, Mais, and Mal Pt. 2

With Mom, Mais, and Mal Pt. 2

March 4, 2021

We got so many good questions for our mom before our last episode that we wanted another chance to answer some of them.  In this episode, we dig a little deeper in navigating the healthcare world as a new mom and as a family.  Our mom also talks about the incredible advocacy work she's done on behalf of families with children who have special health care needs.

 

Mais, Mom and Mal on the coast of Maine

 

 

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With Mom, Mais, and Mal

With Mom, Mais, and Mal

January 17, 2021

In this episode, we host our first guest: our mom!  She helps us answer some of your questions about our childhood and what it was like to raise two daughters with complex medical needs. It was a lot of fun reminiscing so we didn't get to every question, but she'll definitely be back for a part 2! Stay tuned!

 

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Deck the Halls With Mais & Mal

Deck the Halls With Mais & Mal

December 23, 2020

Join Mais & Mal as we share some of our favorite virtual holiday activities and some of our tips for getting through a cold, dark winter.  Your feelings are valid and you are not alone.  Happy Holidays!  We're here for you. 

 

Mal in her Elf PJs

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Mindfulness & Meditation:

Movement: 

(with kids!)

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Other Resources:

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Mal: @curbcutsncocktails

Maisy: @the_maisinator

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A COVID Thanksgiving with Mais & Mal

A COVID Thanksgiving with Mais & Mal

November 25, 2020

In this episode of With Mais & Mal, we discuss HEALTH INSURANCE!

...and our favorite Thanksgiving traditions, foods, and memories. 

We know this year is going to look pretty different for a lot of people, so we shared some of our ideas for how to keep the festivities virtual! 

 

What's your favorite Thanksgiving food or memory?

 

Check out the health insurance marketplace here!

How to watch the Macy's Thanksgiving Day Parade

Festive Zoom Backgrounds for a Virtual Thanksgiving

 

 

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Check In With Mais & Mal

Check In With Mais & Mal

October 26, 2020

We know times are still weird for everyone so we just wanted to take a moment to check in with each other and let you know you're not alone.  Sometimes social media makes it look like things are easy for people, but just know, everyone is doing their best to navigate these unprecedented times. As things start to open up again, don't feel guilty for making the choices that are best for you and your family.

 

If you are having a hard time, and need someone to talk to, reach out:

 

National Suicide Prevention Lifeline

800-273-8255

List of Warm Lines by State

 

 

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Sign up for our Halloween Zoom

Study Abroad With Mais and Mal

Study Abroad With Mais and Mal

October 18, 2020

In this episode, Maisy recounts her study abroad adventures from London to Rome, Italy, Ireland, Scotland, and Paris.  It was an unforgettable experience, but having a chronic illness definitely made things challenging.

 

Maisy in front of the Eiffel Tower

Maisy at the Coliseum

 

Maisy drinking a Guinness at the factory in Dublin

 

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Sign up for our Live Halloween Zoom Party!

We're going to be staying home for Halloween this year and we hope you do too. Join us for a Live Zoom Halloween Party on 10/31!

From 7:00-9:00 (EST)

 

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Mal: @curbcutsncocktails

Maisy: @the_maisinator

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College With Mais and Mal

College With Mais and Mal

September 21, 2020

In this episode, Mais and Mal dive into their experience choosing and attending college. We talk about accommodations, communication, friends, professors, and so much more.

Thank you to Rebekah, Cat, and Samantha for the great questions!

If there are any more that we didn't answer, let us know in the comments and we'll get to them in our next episode!

Here are some fun memories from our college years:

  Mal speaking at a podium

Mal dressed as a fairy for Halloween

Mal walking on graduation day

Maisy dressed as a Pirate for Halloween

Maisy dissecting a sheep brain

Maisy on graduation day from college

 

 

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@curbcutsncocktails

@the_maisinator

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